Now we are back to the waiting game. We scheduled Andrew's appointment, begin the countdown til Feb 7th. It stinks waiting so long, but it is what it is.
Since the wonderful news we got at Andrew's appointment last week we thought all was good. He had a great week, only pain meds once. That was until we lightened up too much last night. A few neighbors came over and we didn't restrict Andrew like we should have. He had a blast, he was up and down the stairs, not really running, but almost, playing and having the best time. He seemed fine and who can blame us for not stopping him! Andrew is 6 and should be able to act like a 6 year old sometimes. Then 9:30 came around and he was in pain and upset. Morning came and he crawled up the stairs because it hurt too bad. We really thought the good news of regrowth meant things would get easier. Keeping our fingers crossed that Andrew can get through this quickly.
Monday, August 9, 2010
Tuesday, August 3, 2010
additional info
What I did not put in yesterdays post is that yes regrowth is wonderful news but... he still has the long road to recovery. Now that regrowth has started, we have to keep Andrew swimming and biking to keep the ball regrowing correctly. This can be a tough stage for some kids. This stage if I understand correctly can take years and there still can be a lot of complications. We are keeping only positive thoughts that Andrew will have none of those complications.
Monday, August 2, 2010
Doctor Appointment
As everyone knows Andrew had an appointment with the Specialist today. It started off very frustrating. Our surgeon was called away for an emergency surgery, so he was not there. The assistant who was in his place originally told us bad news, looks like there is a little change with slightly more flattening to the ball. But she was very uncertain with her answers, then said it might not be Perthes Disease. What !?!?! was our first reaction, if it isn't Perthes, what is it? At that point I asked when the Doctor might be available to speak to. After a few minutes we were told that the doctor was finishing up the surgery and would be up to talk to us in a half hour. So we waited and waited. Finally we got to talk to the doctor.
YAY!!!!! We have very slight bone growth in the femoral head. That is wonderful news and the best news we could have heard. We still need to continue to be strict on his restrictions because we are far from being out of the woods and we still may have some bumps in the road (big and small) but as of right now we are thrilled. Our being strict has paid off, telling our 6 year old no running, jumping, etc. is helping and he is not worse off. The pain is still there and will continue to be throughout the entire process. We are going to switch to Aleve for pain, hopefully it will be a little easier on his tummy. We feel like a ton of bricks has been lifted off our shoulders. Please continue to keep Andrew in your prayers, we still have a long road to full recovery, but at least it appears to be shorter than it could have been. Next appointment is not for 6 months, until that time he is still restricted from physical activities other than swimming/biking/walking and we are continuing to do things the same as we have for the last 4 months.
Ready for a glass of wine and NOTHING tonight.
YAY!!!!! We have very slight bone growth in the femoral head. That is wonderful news and the best news we could have heard. We still need to continue to be strict on his restrictions because we are far from being out of the woods and we still may have some bumps in the road (big and small) but as of right now we are thrilled. Our being strict has paid off, telling our 6 year old no running, jumping, etc. is helping and he is not worse off. The pain is still there and will continue to be throughout the entire process. We are going to switch to Aleve for pain, hopefully it will be a little easier on his tummy. We feel like a ton of bricks has been lifted off our shoulders. Please continue to keep Andrew in your prayers, we still have a long road to full recovery, but at least it appears to be shorter than it could have been. Next appointment is not for 6 months, until that time he is still restricted from physical activities other than swimming/biking/walking and we are continuing to do things the same as we have for the last 4 months.
Ready for a glass of wine and NOTHING tonight.
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